We also met a great lady who is going to work with us to get our story "out there". I told her that when we came home that first night after seeing Sage and knowing that she was not here with us any longer I scoured the web looking for stories of infant or even young pediatric donation. I found very very few. None on neonatal donation. I know that the OPO's have stories archived but you have to ask for them. If you are thinking about donation and want to see how someone else found the process and what their story was, you want it there. I wanted to read about another unfortunate family who went through what we did. How did they come to that choice? What did they do after, did they go see their child? Did they feel like they gained another child(ren)? There are plenty of stories about children waiting and those lucky enough to get a transplant but not of those families who gave the gift. We are not alone, I know that. Is it the stigma of a dead child? Is it the sheer tragedy of the situation? I'm not sure but I'l be damned if another mother or father goes looking for answers and finds nothing.
Scott and Becca, it was an honor to meet you both :)